Tuesday, March 3, 2015

What Does CDH Mean To You?


We want to know what you think of when you hear CDH.

How has this journey changed you?

For me, CDH means strength.
You have to be strong to endure this journey.
And if you didn't start out strong,
it made you strong.

"You never know just how strong you are until you have to be"

Share with us your stories.
Your memories.
The ups.
The downs.
What CDH means to you.

Let's spread #cdhawareness

CDH awareness week is March 25-31st

Tuesday, February 3, 2015

CDH Awareness Tshirts



With CDH awareness week only 49 days away we started our tshirt fundraiser.
Please help us spread awareness by buying one of these great shirts.
The money helps us raise awareness to our local hospitals and community.

This fundraiser will last only 2 weeks so get your shirts while you can!!
Please spread the word and the link.

The money raised will be going to print awareness pamphlets,
items to comfort the kids admitted into the hospital,
and spreading awareness to our community.

Here's what we wrote on the fundraiser page:
We are raising money to spread awareness to our local hospitals and community about Congenital Diaphragmatic Hernia, a deadly birth defect. My son was born 7/14/11 with CDH and survived. CDH affects 1 in every 2500 births. There is no known cause. 50% of babies born with CDH do NOT survive. Most people have never heard of CDH unless they or someone they know has been affected. We want to change this by spreading awareness as well as helping CDH Families. 

Check out the fundraiser at http://www.booster.com/s4lcdhawareness