13 Days Of Thanks

Day 13: S4L is thankful to be able to share the ups and downs rollercoaster with all the CDH families we have connected with. We are also greatful to me able to share these updates with you and try to make a difference somewhere.

Day 12: S4L is thankful for GI specialist and feeding therapist.

Day 11: S4L is thankful for physical therapist.

Day 10: S4L is thankful for CDH specialist and researchers.

Day 9: S4L is thankful for Respitory Therapist. You guys are amazing!!

Day 8: S4L is thankful for ER nurses at Children's hospital Central CA for making all our visits as stress free as possible. You work hard and manage to smile even when exhausted. Thank you ER nurses everywhere!!!

Day 7: S4L is thankful to the NICU staff at UCSF for taking such great care of all the babies in their care. You are an amazing team and have become like family to us!

Day 6: S4L is thankful for the emergency transport teams that have taken care of Liam for both hellicopter rides to UCSF. Thank you for getting our Liam safely to his destination. And thank you to all transport teams out there for doing a wonderful job!!

Day 5: S4L is thankful for ECMO because it helped save so many lives, including Liam's and continues to do so.

Day 4: S4L is thankful for FB page Blenderized Food For Tubies. Because of the info they provided and the support they gave me I started Liam on the BD for a few bolus feeds and because of that he is growing great and even getting chubby cheeks.http://www.facebook.com/foodfortubies

Day 3: S4L is thankful for FB page Feeding Tube Awareness for providing great info on feeding tubes and helping families connect. http://www.facebook.com/FeedingTubeAwareness

Day 2: S4L is thankful for Nayeli Faith Foundation because they helped us when we needed it the most. Not only did they provide UCSF with meal cards and parking passes that got passed onto us and so many other families, they also provided us with a hotel room, food card and gas card to get Liam to his first CDH clinic just a month after he was released. NFF continues to help CDH families. http://www.facebook.com/NayeliFaithFoundation

Day 1:  S4L is thankful for Breath Of Hope. BOH has been there for us and supported us through Liams worst and best days. They provided us with info that we didn't know was available and gave us hope. Thank you for all you so Breath of Hope!!http://www.facebook.com/BreathofHope

CDH Awareness Celebration Balloon Release

We're busy putting together our biggest event yet, the CDH Awareness Balloon Release as part of our celebration for CDH Awareness Week! Congress recognizes March 31st as CDH Awareness day, but this year Breath Of Hope is going for CDH Awareness WEEK! Yes you read that right, WEEK! And S4L is on board with this idea. On Saturday March 30th We will be doing a balloon release in Visalia CA in celebration of CDH Awareness week and to honor CDH survivors as well as CDH Angels. We are also selling CDH Awareness items to raise money for CDH Research. We have the date, March 30th, but we are still organizing the place and time.

 

And for our readers that live too far awar to attend or for whatever reason cannot attend, don't fret, we have an option that allows you to "participate":

 

 

We have CDH Awareness Items available for sale. They are available now as well as at the event.

 

The teal CDH Awareness Macreme bracelet has been very popular and its hard to keep them in stock. They are $10 w/ free shipping. Because its so hard to keep them in stock it could take up to 4 weeks (sometimes longer) for you to get yours. We know the wait isnt ideal but we are very happy that so many of you have stuck with us even through the long wait time.

 

The Bling Awareness Bracelet has had many people interested even though I havent been able to offer teal for CDH Awareness. A few people order pink for their little ones currently fighting CDH or who have survived. This bracelet comes on Clear, Red and Pink only. Still trying to find a vendor that sells teal. They are $10 w/ free shipping and can also take a long period of time to come in as well.

 

 

 

CDH Awareness Teddy Bear's $8 plus Free shipping 5 1/2" tall

 

CDH Awareness Water Bottles $8 plus free shipping Holds 18 oz

 

 

CDH Awarenes Teal Metal ribbon pins $5 plus free shipping

 

 

CDH Awareness Lanyards/badge holder $6 plus free shipping

 

CDH Awareness Suckers 6 for $5 plus free shipping (online price only)

 

CDH Awareness Bandanas $4 plus free shipping

 

 

We also have Teal silicone bracelets $4 each or 4 for $12 plus free shipping.

 

If you are interested in ordering any of these items please email shootingforliam@yahoo.com so that we can send you a PayPal Invoice. Remember 40% of all sales go to CDH Research.