Happy Halloween

Current Fundraisers

1) UpperCase Living Party
Our good friend Cecile Phillips is an UpperCase Living consultant and she has opened up a party for benefit Shooting for Liam. UpperCase Living has great products.
Just visit her site http://cphillips.uppercaseliving.net
Click on Products
Click on Associated with Open House
Then Choose "Shooting For Liam"
A portion of your purchase will be donated to Shooting For Liam to help spread CDH awareness.

2) Awareness Bracelets
We are selling rubber teal bracelets embossed to say "SHOOTING FOR LIAM CDH AWARENESS". They are $6 each and free shipping. We are accepting PayPal only for these. Please allow 3 weeks for delivery. Just email shootingforliam@yahoo.com with your order and we will sent you a PayPal invoice.

3) Our good friend Cecile Phillips is also selling 4x6 car decals featuring a teal ribbon and says CDH. She will be donating $2 for every decal sold to Shooting for Liam. Each decal cost $16 and includes tax, shipping and handling. To order message her on her facebook page http://www.facebook.com/cecile.phillips.3

4) We are still asking for donations of teethers for the Teethers for Teethies drive to benefit children at Childrens Hospital Central CA. Donations will be dropped off on October 17th. If your interested in donating please email shootingforliam@yahoo.com

Teethers For Teethies

Shooting For Liam

Teethers For Teethies Drive

 

We are collecting teethers for teething patients at Children's Hospital Central CA.

If you would like to interested in donating please email shootingforliam@yahoo.com

 

Our goal is 100 teethers and we will be taking them to Children's Hospital on October 17th.

BIG NEWS

After much deliberation and prayer we have decided to make it official. We are working with Breath Of Hope inc to become a non-profit chapter here in California. Yes we are taking the plunge and dedicating our time and efforts to raising CDH awareness and helping families affected by CDH. And we couldnt be more excited. I am currently working on a fundraiser to raise money for the CA filling fees. Please help us get this non-profit started so we can help other families. We feel its time for us to start giving back. Please take a few minutes and look at our fundraiser page and check out all the neat things we are selling. We appriciate your support.

A Long Journey

<a href="http://www.TickerFactory.com/">
<img border="0" src="http://tickers.TickerFactory.com/ezt/d/2;10769;28/st/20110714/n/Liam+Michael/dt/-3/k/b37b/age.png"></a>

The past 11 months has been a crazy, stressful journey for us.

Liam had a total of 9 hospital stays,

4 major surgeries,

Too many to count minor procedures,

And is far behind in just about every category.

We've spent more time in the hospital than home,

Our family has spent more time apart than together.

Thankfully we've had 3 1/2 weeks at home now.

 On July 14th Liam will be turning 1!!

Liam at 7 hours old, our first meeting @Kaweah Delta

Our second metting at 48 hours old @UCSF

Liam on ECMO

7/19/11 Taken off ECMO after 4 days

At 1 week old he under went life saving repair surgery 7/21/11

And it was the best birthday gift I had ever recieved

At 1 month old Liam was excubated for the first time

And we got to hold him for the first time

And we got our first family portrait

At 1 month he also got his first bottle

At 1 month and 4 days old Liam got off CPAP and on a Nasal Canula

At 6 weeks (1 1/2 months) Liam got to come home

6 weeks old I took his first portraits at home

September

At 2 months old Liam's 2nd hospital addmitance was @UCSF for an NGtube. He was officially labeled failure to grow. We stayed 10 days.

October

His 3rd hospotal admittance was 2 days after we were discharged from UCSF. We took him to Childrens because he couldn't hold his food down. He under went surgery for  a Nessen Fundoplication and Gtube placement. He also learned he was Biotinadase Defficient and started him on Biotin. We stayed 4 weeks, spending his first Halloween and the begining of November in the hospital.

We were fortunate to spend Thanksgiving and Christmas at home.

We also got to bring in the new year at home

But in January Liam cought a cold that landed us in the hospital for 3 days (admittance #3)

In Febuary he got "sick" again and we went back to Childrens. He couldn't hold down his 30 calorie feeds. (admittance #4)

In March we were back at Childrens for the same issues resulting in admittance #5. Liam under went surgery to take out the Gtube and replace it with a GJtube. This worked...for a short period of time.

48 hours after being discharged we took Liam right back in for yet again the same issues. Admittance #6. They played around with his formula and said they figured it was just a severe food allergy and was put on Elecare.

Nothing seemed to help Liams underlying respitory issues that we were sure was responsible for all the vommiting. In April we were back at Childrens for yet again the same issues. Admittance #7. From there Liam was air lifted to UCSF where they tried to figure out if he'd need his high right side diaphragm repaired. They decided not to risk it and after 2 weeks discharged Liam on oxygen.

Admittance #8 was just for a chest CT and bronchioscope. They figured out that his right lung doesnt fully expand because of his high right diaphragm and his left lung is way underdeveloped. His upper airway is slightly floopy. The CT also shows pnumonia and the Bronch showed an infection in his airway. Regular xrays dont show pnumonia in Liam when its in his lower right lung.

Admittance #9 was due to a severe allergic reaction causing asthma attacks and poor air movement in his lungs.

Its been a crazy journey so far. We've been blessed every step of the way, even if its frustrated us more than anything weve ever been through before. We've had 3 1/2 weeks Through it all our little man has kept a smile on his face.

Comming Soon

We are currently working on events to spread CDH awareness. Please bare with us. If you have any questions, concers, ideas, or would like to help feel free to email us at shootingforliam@yahoo.com